When the Alzheimers diagnosis first hits you, it can feel devastating and overwhelming. Alzheimers patients often feel angry and fall into the "Why Me?" syndrome, while caregivers suffer with helplessness and uncertainty about how the disease will progress. For the 5 million patients and their families, Alzheimer care can go on for as many as 20 years, so learning how to cope and seeking education on the matter is crucial.
The medical difficulty of Alzheimers is that no two patients progress at the same rate or exhibit the same Alzheimers symptoms. Some Alzheimers patients are prone to wandering off or forget that they are unable to drive a car.
Other earlier signs of alzheimers include misplacing keys, forgetting names and becoming irrationally upset without remembering why. In the worst stages, the patient can no longer speak or recognize friends and family.
"Each individual is so unique, so different, there is no black and white or this is how you take care (of the patient)," says Connie Kudlacek, former director of the Alzheimers Association Midlands Chapter. "Instead of focusing on the negatives, we need to look at the positives and find an opportunity to continue to nurture their personality and give them an opportunity for success, even in the later stages."
The emotional difficulty of caring for someone with Alzheimers is the "losing and grieving while providing the care because Charlie isn't Charlie anymore," relates Professor Jacquelyn Frank at the Frank of Ulndy's Center For Aging & Community. She describes the feelings as "anticipatory grief," which refers to the fear of losing someone before they've even died, and "ambiguous loss," which is the discordant feeling of caring for someone who is physically alive but socially lacking. Frank highlights the importance of airing out emotions in an Alzheimers support group to maintain a positive attitude in the face of such isolation and hopelessness.
Reducing frustrations is one tactic that will help you provide effective Alzheimer care. At first you may struggle with your loved one trying to bathe or feed them, but over time you'll get to know their natural schedule of when they are most agreeable.
Established routines can help make the day less unpredictable and more manageable for the Alzheimers patient and you. Limiting difficult decision-making is very helpful for the Alzheimers caregiver. For instance, a closet full of clothes may be intimidating, whereas a choice between two outfits may be totally do-able.
You may sometimes feel like you're walking on egg shells when communicating with a loved one who requires Alzheimer care. Frustrations can flare up tempers and it can be hard to understand the root of the problem. Sometimes Alzheimers patients forget words or substitute incorrect words. They can lose their train of thought, require more time deciphering your words or they may curse incessantly.
The stages of Alzheimers can change suddenly, without warning. You can help by remaining patient, making eye contact while listening, using visual cues and keeping your language simple, as well as avoiding criticism, interrupting and arguing.
There are many different Alzheimer care treatment options, depending on the severity of the illness and your budget. Many caregivers try to keep their loved one at home for as long as possible, looking into products that may safeguard them from an accident or heightened confusion. Other family members may try splitting their time with the patient so he or she is never left alone.
There are specialized caregivers, such as "Comfort Keepers," who make house calls as well. There are adult day care centers, which allow family members to continue working their normal schedules while the Alzheimer patient receives care or participates in planned activities. Lastly, there are long term care facilities that fully address the needs of Alzheimers patients 24/7. |
